ask
Stop treating families as obstacles
Substitute decision-makers and family caregivers described being told to give staff space, being excluded from decisions already taken, and having their knowledge of the person treated as interference.
Protecting their role means a documented duty to consult, a clear escalation route when they are excluded, and recognition that a caregiver's knowledge of a person is clinical information.
Source: Listening Report §6, Accountability and Recommendations — Listening Report §6
As of 2026-06-01. Review by 2027-06-01.